fibromyalgia

My pain is not your pain. It’s induced by inflammation, and taking your arthritis medication won’t help me.  I can’t work my pain out or shake it off.  It’s not even a pain that stays put, because today it’s in my shoulder, but tomorrow it may be in my foot or even gone.  My pain is thought to be caused by improper signals sent to the brain, it’s not properly understood, however, it’s real.

I get exhausted, but I am not just tired, I’m frequently in a grave state of exhaustion.  I may want to take part in physical activities, but I can’t.  Please don’t take this personally, just because you saw me at the shopping centre yesterday, doesn’t mean that I can assist you with yard work today, and it isn’t because I don’t want to, it’s because I’m paying the price for straining my muscles beyond their capacity.

I am forgetful, and for those who have it, it’s called Fibro-fog.  I may not recall your name, but I do remember you.  I may not remember what I promised to do for you, even though you told me just seconds ago.  My problem has nothing to do with my age, and I do not have a selective memory.  On some days, I just don’t have any short-term memory at all.

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I’m clumsy, and if I step on your toes or run into you five times in a crowd, I’m not intentionally aiming at you, I do not have the muscle control for that.  If you are behind me on the stairs, just please be patient, these days, I take life and stairwells one step at a time.

I have sensitivities that I just can’t stand.  It could be any number of things from bright sunlight, loud or high-pitched noises, or odours.  FMS has been called the aggravating everything disorder, so don’t make me open the curtains or listen to your child screeching, I really can’t stand it.

I can’t stand the heat either, or humidity.  If I’m a man, I sweat profusely, and if I’m a lady, I perspire, both are every bit as embarrassing, so please don’t feel compelled to point this shortcoming out to me, I already know.  And don’t be surprised if I shiver uncontrollably when it’s cold, I don’t tolerate the cold either.  My internal thermostat is busted, and no one knows how to repair it.

Yes, I get depressed, and there are days when I would rather stay in bed, or in the house or die.  Severe, persistent pain can induce depression, and your sincere care and understanding can pull be back from the threshold of hell, however, your sneering comments can tilt me over the edge.  My body does not handle stress very well, that doesn’t mean that I’m slothful, however, everyday stresses make my symptoms worse, and can incapacitate me altogether.

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I may be fat or I may be skinny, either way, it’s not by choice.  My body is not your body, and my appestat is broken, and no one can tell me how to mend it.

On good days, if you see me smiling and functioning normally, don’t presume that I’m well.  I have continuing pain and fatigue, an illness with no cure.  I can have my good days or weeks or even months, but it’s the good days that are what keeps me going.

People who suffer from FMS are all unique, and are not all alike.  That means I may not have all of the problems listed above, but I do have pain above and below the waist, and on both sides of my body which has lasted for an extremely long time.  I may have migraines or hip pain or shoulder pain or knee pain, however, I don’t have exactly the same pain as everybody else.

This is based on communications with people throughout the world, males and females, who suffer with Fibromyalgia.  It doesn’t represent any one of the over 10,000,000 people with FMS, however, it can help the healthy person realise how devastating this illness can be.  Please don’t take these people and their pain lightly.  You wouldn’t want to spend even a day in their shoes, or their bodies…

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